ROADMAP: AM I READY?

Learning

I am here: New to scleral lenses and needing some general orientation about the process, timelines, costs and so on.

Scroll down to get started!

1. What exactly are scleral lenses?

Think of scleral lenses as:

small prosthetic devices that look like extra large hard contact lenses

Scleral lenses are made of the same kind of material as rigid gas permeable contacts, but they are larger and are shaped differently.

What makes scleral lenses unique is that instead of floating on the surface of the eye like contacts, they vault over the cornea and act as a reservoir to keep the cornea covered with fluid. The edges of the lenses come to rest on the sclera (white of the eye) - which is how the lenses get their name.

Because of the way sclerals interact with the eye, including potentially creating some suction, it’s important they be properly customized by an expert for each patient and that the patient is monitored regularly.

How are sclerals different from contacts?

2. Who wears scleral lenses?

Mostly people with one (or more) of these:

Vision

Many people get scleral lenses when they have vision problems that originate in the cornea but cannot be corrected with glasses or conventional contacts. Keratoconus is a common example.

Ocular Surface Disease (OSD)

Ocular Surface Disease is a category that includes many conditions commonly referred to as Dry Eye Disease, and more. Sclerals may be recommended for medical reasons as a way to provide a therapeutic environment and protect the cornea against damage from exposure.

Ocular Surface Pain (OSP)

Ocular Surface Pain is a term that encompasses all of the discomfort that the surface of your eyes can cause, such as grittiness, irritation, stinging, tired or heavy lids, light sensitivity, or burning. Sclerals may be recommended when discomfort is severe and persistent enough to interfere with quality of life.


Here are some specific examples:

People who have one of these diseases

  • Keratoconus or Pelllucid Marginal Degeneration

  • Ocular Graft-v-Host Disease (oGvHD)

  • Stevens Johnson Syndrome

  • Sjogrens Disease

People who have had one of these surgeries

  • Corneal transplant

  • Refractive surgery (LASIK, PRK, RK, SMILE, etc)

  • Blepharoplasty

  • Vestibular schwannoma surgery (also called Acoustic Neuroma surgery)

 3. What’s involved in getting sclerals?

  • Your referring eye doctor is the doctor who normally treats your eye disease or condition. They are usually an ophthalmologist (general, corneal specialist or oculoplastic specialist) but they may be an optometrist. They may refer you to a scleral lens provider if they feel scleral lenses are the most appropriate treatment for you.

    Generally speaking, scleral lens providers are optometrists, not ophthalmologists or other eye care providers (though there are rare exceptions). People who get scleral lenses commonly continue with two eye doctors working in tandem over the long term: the one managing their disease, and the one managing their sclerals.

    There are also self-referrals. Many people pursue scleral lenses on their own initiative because they have read stories online. If this is you, there may be a significant additional burden of finding a suitably qualified scleral lens provider. And you still have two needs: disease management, and scleral lens management.

  • Your scleral lens fitter will need to examine you and talk with you, and test out one or more “trial lenses” (or “diagnostic lenses”), in order to verify that you are a suitable candidate and determine the best path forward.

    You’ll certainly want to come prepared with your questions at that appointment. See Phase 1b - Preparing for a list of questions.

    What if I’m not a candidate? Find out why. Then it’s either back to the drawing board and discuss your other treatment options with the referring doctor, or seek out a second opinion from a scleral lens provider with expertise in your disease or condition.

  • Once you know your provider is ready to move forward, you have to make a choice about whether you are ready to move forward:

    • Should I do this?

    • Should I do this now?

    • Should I do this with this provider?

    This decision is often not a slam dunk. Success is not guaranteed. There may be significant financial commitments involved. Scleral lenses are a medical treatment, not a commodity - you do not get your money back if not satisfied, though in some cases there may be a “warranty period” where you are not liable for the lens part of the cost if you pull out early. The process can also be emotionally taxing (more on that further down the page).

    So, don’t rush this part.

    Take your time, follow our roadmap, and carefully review the questions in Phase 1b - Preparing.

  • The fitting process generally involves multiple appointments.

    At each appointment you’ll try on a set of lenses, and your provider will assess the fit from the standpoint of technical correctness. You’ll give feedback on comfort and vision.

    It is normal for minor design modifications to be needed, sometimes repeatedly, in which case they will order more lenses and you’ll come back to try those.

    This process may take days, weeks, or months, depending on lab turnaround time for manufacturing your new lenses, how your provider’s practice arranges the appointment schedule, and how many attempts it takes to get the best fit.

  • Training happens in parallel with fitting and may be provided by a contact lens technician or optometrist.

    You’ll be trained in how to apply (insert), remove, and care for your lenses. Application and removal normally involves use of little rubber “plungers” or other specialty tools.

    Training on lens application alone can take days, weeks or months. There is no norm. It takes what it takes. The best antidote for these challenges is a highly skilled trainer who has all the possible tools and techniques at their fingertips. We also have lots of education resources on this site to help with training.

    You should be fully trained before you are given any lenses to take home, and you should be given detailed instructions for every step in lens use and care.

  • Two things come together when your lenses are dispensed:

    1) These are “keeper” lenses, meaning your provider is happy with the technical features of the fit and with your vision, and you are happy with your vision and comfort. This does not necessarily mean they are the “final” lenses, however.

    2) You are fully instructed, trained and equipped to use and care for your lenses independently at home.

    Typically, you are given a kit with “starter” supplies and instructions for what products to buy and where. You should also be told how to get in touch if any issues or questions arise.

  • Follow-up appointments are essential after your first lenses are dispensed.

    During follow-ups, your provider will determine whether any further adjustments are needed, and can review your experience to date, your questions and doublecheck your lens care protocols.

    You’ll go through an initial transition period - from weeks to months - where you’re learning new routines, sharpening your application and removal skills, experiencing full time scleral lens wear for the first time, and getting settled with where and how frequently to purchase supplies. You’ll probably have lots of questions at this stage.

    When you’ve been solid on the daily routines for awhile, then you may find yourself with lots of questions about how to handle sclerals in a different environment. How do I deal with them at work? Can I take a long drive? Is it possible to travel? Or go camping?

    There will be solutions for all of these things, and you’ll probably find it very helpful to tap into the community for inspiration and examples.

Potential complicating factors

Working with a provider who has insufficient knowledge, training, experience or mentoring.

Due to the current state of scleral lens industry growth, which has outpaced infrastructure and standards for provider training, there are large numbers of scleral lens providers who have received minimal training and have little experience. There are also providers who may have fitted many sclerals, but lack specialist skills for fitting people with complex corneal diseases. Critically, the medical practice itself may not be structured and staffed for the unique needs of scleral lens users. Learn more about scleral lens providers.

Anxiety

So far we’ve talked about the scleral lens process mostly from a logistical perspective, because there’s a lot people want to know. However, it is also important to be aware that getting sclerals can be emotionally grueling.

Many of us who need sclerals - whether for vision, ocular surface disease or ocular surface pain - are going down this path only after other medical treatments have failed us in some way. As a result, we may be coming into the process thinking “This is my last resort”. When that type of pressure is added to the disease burden we’re already carrying, and the practical challenges and learning curves, it can increase anxiety, which then also makes the process harder. If this describes you, consider the supports you may need, and please reach out to the Dry Eye Foundation in case we can help.

4. How much do they cost?

  • Quite an impressive spread, isn’t it!

    $2,000 to $3,000 is pretty typical for conventional sclerals.

  • You will need a variety of specialty supplies that must be ordered online, including preservative-free saline, cleaning and disinfection solutions, and lens handling devices. Some people need more specialty items than others.

    Plan on needing more preservative-free saline (one of the more expensive items) in the first months while you’re refining your lens application skills.

  • Make sure to ask your insurer about this specifically!

    Accidents: All scleral lens users have war stories to tell about lenses that shattered between their fingers, went down a drain or bounced, landed on the floor and got stepped on. These things happen.

    “Ordinary wear and tear”: In the ordinary course of usage, a scleral lens may need replacement in 1 to 5 years. You may be told a specific lens replacement interval for yours.

  • If you pursue sclerals, start asking questions about insurance as early as possible.

    Keep in mind:

    • Some medical practices are cash pay only for scleral lenses, meaning you will be fully responsible to deal with your insurer.

    • Some insurances will pay only for the devices (lenses), not the appointments, but - with certain exceptions for advanced technologies - the appointments are likely to cost more than the lenses.

    • Look to the long term strategy. Lenses need periodic replacement; they can also break; and changes can happen to your eyes that require re-fitting.

    • Some people change insurers specifically due to the need for scleral lens coverage.

5. How complicated is it to use sclerals?

It’s really all about the motivation.

Yes, sclerals will make your life a bit more complicated in some ways, but it will all become routine. The complexity of sclerals is rarely a serious deterrent for anyone who gets significant benefit from the lenses. Most of us just want to see, or see more comfortably.

Below are a few “lifestyle impact” notes just to put you in the picture.

Daily application, removal and lens care?

For most people these things become routine fairly quickly, though you should expect to continue to put in noticeably more effort than if you were wearing ordinary contacts. How much more effort varies from person to person.

Supply management?

This is no joke, though it is much better than it was in the past when we had chronic saline shortages. You have to plan ahead for sclerals, because you can’t get your supplies locally (unless your optometrist sells them). So it’s very important to have a reliable supplier and maintain an emergency stash.

“Midday fogging”?

Some users have chronic problems with their lenses filling with deposits during the day, and find that they have to take them out, clean them off and put them back in during the day - maybe even multiple times. That may be a significant disruption, especially if you’re away from home.

Emergency plungers

When you have a device in your eye that can only be removed with a plunger, you get obsessive (or, if you don’t, you should) about making sure you have a spare plunger everywhere “just in case”.

Traveling? Camping?

Yes, you absolutely can do these things even though you wear sclerals. It just takes motivation, research and maybe some creativity. The community has some great blogs about getting out and about with sclerals.

6. How do I know if I have the right provider?

Your eye care specialist may refer you to an optometrist who is skilled and experienced in fitting sclerals for people with your disease or condition. See Section 3 (above) for more information.

Some people may choose to pursue sclerals without a referral.

Please read About Scleral Lens Providers for important information to help you determine whether a particular scleral lens provider is a good choice for you.

TIP: If you have a rare disease, or if Ocular Surface Pain is the primary motivation for sclerals, you should give extra consideration to your provider’s expertise in your disease or condition.