About Scleral Lens Providers

1. You need a pro.

Scleral lenses are not just fancy contacts. They’re prosthetics, and they’re used primarily for treating difficult corneal diseases and conditions. (See video Contacts vs Sclerals.)

Sclerals represent a relatively new and evolving area of medicine. When it comes to providers, there are far more rookies available than pros. No clear standard of care has been established. Eye care providers that refer patients for sclerals are not all working from the same information base about what sclerals can (and can’t) do. Scleral lens provider skills, knowledge, training and experience vary tremendously. When you add all these facts to the inherent uncertainties of the scleral lens process, no wonder it gets challenging!

If you are struggling to understand whether your provider can meet your needs, or how to find one who can, you’re not alone.

Scroll down for more information and tools for your provider search!

2. Who are the pros?

Six features shared by scleral lens pros:

  • Evidence of this will be visible in the provider’s bio. They have probably undergone cornea and contact lens residency training. Alternatively, they may have been mentored by an expert.

    Providers who are “dabbling” in scleral lenses will not have the appropriate knowledge and experience.

  • There are three main motivations for scleral lenses:

    • Vision loss, e.g. from keratoconus

    • Ocular Surface Disease, e.g. SJS, GvHD, Sjögrens, non-Sjogrens Dry Eye Disease

    • Ocular Surface Pain, e.g. burning, grittiness, irritation, light sensitivity or pain

    Few providers have equal competence in scleral lens care for each category, let alone all possible indications. For example, they may fit hundreds of keratoconus patients, where the vision outcome is the primary measure of success, but may have much more limited experience with Sjögrens, where vision may or may not be an issue.

    Disease-specific skills are a particularly important consideration in circumstances such as these:

    • Rare corneal diseases and conditions

    • Post refractive vision disorders accompanied by dryness or pain, e.g. RK, LASIK, PRK

    • The primary indication is Ocular Surface Disease

    • The primary motivation is Ocular Surface Pain symptoms but not associated with severe Ocular Surface Disease, and where corneal neuropathy status is undetermined

  • Scleral lenses are not simply a specialty contact that can be added to an optometry practice with no other changes.

    The optometry practice, as a business, needs to be organized specifically to accommodate the following unique needs of scleral lens patients:

    • an uncertain number of progressive lens adjustment appointments (pre-dispense)

    • patient training in lens handling and care by an experienced trainer (pre-dispense)

    • potential for protracted training support (pre-dispense)

    • information and support needs (post-dispense), including guidance on procuring appropriate supplies

    If the necessary organizational and staff training investments are not made, the practice cannot consistently offer quality scleral lens patient care.

  • Scleral lens fitting cost range

    We have heard of people paying as low as $600 and as high as $15,000, with $2,000 to $4,000 commonly reported. Costs in excess of $5,000 typically involve unique technologies.

    Low cost scleral lens fitting may be a red flag.

    A fee structure that does not pay the provider adequately is a red flag. This may include scenarios where a vision care plan (as opposed to a medical plan) is providing inadequate reimbursement to the provider for their services.

    Scleral lens fees should be sufficient to ensure the medical practice receives:

    • lens costs

    • costs associated with providing appointments and training sessions

    • (in a private practice) reasonable profit to the practice

    When fees are inadequate, providing quality scleral lens patient care is unsustainable.

    Less experienced providers who have not fully adapted their business model for sclerals may continue to underestimate the clinical investment required for proper scleral lens patient care.

    In an optometry practice like this, patients who are not quick fits and/or quick learners may not get their needs met without financial loss to the business, which can be demotivating to the provider.

    Are high costs ever a red flag?

    Scleral lenses are a medical process that involves technology.

    Generally speaking, the value of the provider’s knowledge and experience plus the support that their practice will offer you both during and after fitting should constitute the core treatment costs.

    However, some patients will be offered advanced technologies. These technologies may be designed to offer higher quality vision correction, or to offer lens design customization features that are required because of certain conditions or anatomical features. You may even opt for a high technology solution specifically to speed up the fitting process, i.e. to reach your best possible fit more quickly. This efficiency is a significant value-add, although it’s helpful to keep in mind that this too is not guaranteed.

    Depending on the circumstances and your needs, the lens technology employed may or may not play a significant role in your ultimate satisfaction. So, if you are quoted costs on the high end of the range, we recommend that you do not allow advanced technologies to distract you from the need for provider qualifications and the broader services that should be provided.

  • The standard of care for scleral lens patients is immature and evolving. This makes collaboration amongst scleral lens professionals essential to improving the standard of care and increasing patient access to competent care.

    When a scleral lens fitter has a challenging patient, they may need to consult a peer, whether about the fit, or about unique training and adaptation needs.

    When a scleral lens fitter experiences lack of success with a given patient, they need to be willing to consider the possibility that this is not exclusively due to patient characteristics but also because the provider has reached the limits of their skillset and/or the technology they are employing. When the patient’s best interests require it, they need to be willing to refer the patient to a colleague with a different skillset or technology.

  • Different patients have different needs. These needs may be related to medical indication, the nature of vision correction needed, eye or eyelid characteristics, or other factors.

    There are many scleral lens technologies available, and they vary greatly in the extent to which their various design parameters and optical properties may be customized to refine the results. The are priced accordingly.

    The expert scleral lens fitter has appropriate pathways to meet their various patients’ needs.

    EXCEPTION: Specialty centers whose patient base consists entirely of complex corneal disease patients. These practices typically require referrals and offer only advanced technology options.

3. How do I find a pro without a referral?

  • Please review the Learning and Preparing sections of the Roadmap on this site. The Preparing section has a helpful list of questions to discuss with a proposed new provider.

    Also, familiarize yourself with the description of scleral lens pros on this page.

  • There are several potential referral pathways for scleral lens treatment:

    • Referral from an ophthalmology subspecialist (cornea, oculoplastics or other)

    • Referral from an ophthalmology generalist (“comprehensive ophthalmologist”)

    • Referral from a medical optometrist

    Generally speaking, it’s better to have a referral from a specialist who will continue to manage your disease and who has an established relationship with the scleral lens provider than to try to go it alone.

  • The Scleral Lens Education Society, which offers a fellowship program for scleral lens providers, has a list of providers:

    Find a Scleral Lens Specialist

  • FACEBOOK

    In any rare disease situation, peers and support groups can be a great source of information on providers.

    The Facebook scleral lens group My Big Fat Scleral Lens can be helpful for finding providers, as can the Keratoconus or other disease groups.

    When posting questions about providers to the group, make sure you post disease specifics! Make it clear exactly WHY you’re pursuing sclerals. A provider might have been great for someone else’s needs, but not necessarily be right for yours.

    BIO REVIEWS

    Googling your city plus scleral lenses may help you get a short list to start reviewing. Look at the provider’s bio in light of the advice under “Who are the pros?” above. It should be clear that scleral lenses are an important part of what they do, not a sideline.

SIDEBAR: “Sclerals won’t work for you.”

When an eye care provider advises me that I am not a good candidate for scleral lenses, should I take this at face value and move on?

It depends on who’s saying it and why.

Persistent disparities in the scleral lens knowledge base amongst eye care professionals can make it difficult for some patients to obtain accurate, realistic information about scleral lens potential for their indication. This is especially true if their indication is not yet commonly associated with scleral lens use (such as keratoconus) or is reputed to be difficult to treat.

Always ask why

If you are told that you are not a good candidate, ask for specifics, such as:

  • Do I have any contraindications?

  • Is my disease or eye condition something that, in general, cannot be treated or improved with sclerals?

  • Is my disease or indication something that has a low success rate with sclerals? If so, is there anything they know of that might increase the odds of success?

  • Do they feel that my disease state is not severe enough to warrant sclerals? In the case of ocular surface disease (e.g. dry eye, MGD), bear in mind that symptoms may be much more severe than clinical signs of disease, so you may need to put in extra effort to explain your motivation.

  • Does the provider have doubts about whether the practical challenges of sclerals are compatible with my needs and limitations? (This might include cost considerations.)

Second opinions

Seeking a second opinion - whether from a specialist who advised against a scleral lens referral, or a scleral lens provider who advised against proceeding - is a valid course of action.

Some suggestions before you do so:

  • Read the first four sections of the Roadmap on this website. This will help you form better questions.

  • Familiarize yourself with the section above on characteristics of excellent scleral lens providers. If your potential scleral lens indication is questionable enough that at least one professional said no, it is even more important that your second opinion is experienced with your medical indication.