ROADMAP: AM I READY?

Learning

I am here: New to scleral lenses and needing some general orientation about the process, timelines, costs and so on.

Scroll down to get started!

1. What exactly are scleral lenses?

Think of scleral lenses as:

small prosthetic devices that look like extra large hard contact lenses

Scleral lenses are made of the same kind of material as rigid gas permeable contacts, but they are larger and are shaped differently.

What makes scleral lenses unique is that instead of floating on the surface of the eye like contacts, they vault over the cornea and act as a reservoir to keep the cornea covered with fluid. The edges of the lenses come to rest on the sclera (white of the eye) - which is how the lenses get their name.

Because of the way sclerals interact with the eye, including potentially creating some suction, it’s important they be properly customized by an expert for each patient and that the patient is monitored regularly.

How are sclerals different from contacts?

2. Who wears scleral lenses?

Mostly people with one (or more) of these:

Vision

Many people get scleral lenses when they have vision problems that originate in the cornea but cannot be corrected with glasses or conventional contacts. Keratoconus is a common example.

Ocular Surface Disease (OSD)

Ocular Surface Disease is a category that includes many conditions commonly referred to as Dry Eye Disease, and more. Sclerals may be recommended for medical reasons as a way to provide a therapeutic environment and protect the cornea against damage from exposure.

Ocular Surface Pain (OSP)

Ocular Surface Pain is a term that encompasses all of the discomfort that the surface of your eyes can cause, such as grittiness, irritation, stinging, tired or heavy lids, light sensitivity, or burning. Sclerals may be recommended when discomfort is severe and persistent enough to interfere with quality of life.


Here are some specific examples:

People who have one of these diseases

  • Keratoconus or Pelllucid Marginal Degeneration

  • Ocular Graft-v-Host Disease (oGvHD)

  • Stevens Johnson Syndrome

  • Sjogrens Disease

People who have had one of these surgeries

  • Corneal transplant

  • Refractive surgery (LASIK, PRK, RK, SMILE, etc)

  • Blepharoplasty

  • Vestibular schwannoma surgery (also called Acoustic Neuroma surgery)

 3. What’s involved in getting sclerals?

Potential complicating factors

Working with a provider who has insufficient knowledge, training, experience or mentoring.

Due to the current state of scleral lens industry growth, which has outpaced infrastructure and standards for provider training, there are large numbers of scleral lens providers who have received minimal training and have little experience. There are also providers who may have fitted many sclerals, but lack specialist skills for fitting people with complex corneal diseases. Critically, the medical practice itself may not be structured and staffed for the unique needs of scleral lens users. Learn more about scleral lens providers.

Anxiety

So far we’ve talked about the scleral lens process mostly from a logistical perspective, because there’s a lot people want to know. However, it is also important to be aware that getting sclerals can be emotionally grueling.

Many of us who need sclerals - whether for vision, ocular surface disease or ocular surface pain - are going down this path only after other medical treatments have failed us in some way. As a result, we may be coming into the process thinking “This is my last resort”. When that type of pressure is added to the disease burden we’re already carrying, and the practical challenges and learning curves, it can increase anxiety, which then also makes the process harder. If this describes you, consider the supports you may need, and please reach out to the Dry Eye Foundation in case we can help.

4. How much do they cost?

5. How complicated is it to use sclerals?

It’s really all about the motivation.

Yes, sclerals will make your life a bit more complicated in some ways, but it will all become routine. The complexity of sclerals is rarely a serious deterrent for anyone who gets significant benefit from the lenses. Most of us just want to see, or see more comfortably.

Below are a few “lifestyle impact” notes just to put you in the picture.

Daily application, removal and lens care?

For most people these things become routine fairly quickly, though you should expect to continue to put in noticeably more effort than if you were wearing ordinary contacts. How much more effort varies from person to person.

Supply management?

This is no joke, though it is much better than it was in the past when we had chronic saline shortages. You have to plan ahead for sclerals, because you can’t get your supplies locally (unless your optometrist sells them). So it’s very important to have a reliable supplier and maintain an emergency stash.

“Midday fogging”?

Some users have chronic problems with their lenses filling with deposits during the day, and find that they have to take them out, clean them off and put them back in during the day - maybe even multiple times. That may be a significant disruption, especially if you’re away from home.

Emergency plungers

When you have a device in your eye that can only be removed with a plunger, you get obsessive (or, if you don’t, you should) about making sure you have a spare plunger everywhere “just in case”.

Traveling? Camping?

Yes, you absolutely can do these things even though you wear sclerals. It just takes motivation, research and maybe some creativity. The community has some great blogs about getting out and about with sclerals.

6. How do I know if I have the right provider?

Your eye care specialist may refer you to an optometrist who is skilled and experienced in fitting sclerals for people with your disease or condition. See Section 3 (above) for more information.

Some people may choose to pursue sclerals without a referral.

Please read About Scleral Lens Providers for important information to help you determine whether a particular scleral lens provider is a good choice for you.

TIP: If you have a rare disease, or if Ocular Surface Pain is the primary motivation for sclerals, you should give extra consideration to your provider’s expertise in your disease or condition.